Team Emi

Team Years: 3
https://www.ds-stride.org/club21walkathon/profiles/team/TeamEmi

IT'S THE MOST WONDERFUL TIME OF THE YEAR!

Team Emi is Back

and ready to raise awareness and funds to support, educate, advocate and celebrate the lives of individuals with Down syndrome and their families. 

This year, we're excited to announce that Emi walks!  That's as big as the main event itself.  For more about how your support helps and reasons we walk, follow on Instagram @EmiRocksandWalks

Please join us, however you are able.  Make your tax-deductible donation today and take the first step toward helping us achieve our goal. Thank you for your support!

Much Love,

Team Emi Captain (Nan) and Co-Captain (Young)

Our Funds Raised: $20,135.00
My goal: $15,000.00 134%
Fundraising History
Bassim Sohrab $40.00
The Contant’s Private
Jimmy, Erica, Siena and Sydney $100.00
Go Emi!
Trang Cao Private
Go team Emi! Fighting!
Jeni Alsaybar $20.00
Jeni Afuso and Dylan Ho Private
Love you guys! So proud of what you guys are doing. So much strength and love!
Pam & Brian $100.00
Bummed we’re missing out this year. Go team Emi! ??
Team Emi - AV $100.00
Richard Oshiro $50.00
TEAM EMI!!
Minsik Choi $100.00
Mia Armstrong $200.00
Emi!!!! We love you and are so proud of you! Song family you are so beautiful ?? We are cheering y’all on! Hope we can see each other real soon. Go get em! Xoxoxo The Armstrong family
Ben Lee $100.00
Loran Helin $100.00
Kathleen Hanpachem Google Match $200.00
Anonymous Private
Go, Emi!! You are one gorgeous little girl. Love and prayers from Texas.
Anonymous Private
Annie Tung Private
Team Emi, you got this!
Alida Demirjian Private
The Harrington Family $50.00
Go Emi! We wish we could be there to walk with you but we’ll be cheering you on from San Diego!
Mike R. $100.00
Go Team Emi!
Jess, Ted, Ella & Chase $100.00
Go Emi! We love you guys and can't wait for you to beat and surpass that goal.
Alisa Adams Private
The Powers Family $100.00
Go team Emi!! We love you Song family!
Julie Casey Private
Go Team Emi!
Danny Pomerantz $25.00
Allene Private
Czrena Truong $50.00
Alana Private
Go team Emi, go!
Pat Au $100.00
Good luck w the walk Yong and Emi!!! Routing for you with all our hearts Audrey, Felicia and Pat
Wayne $100.00
Casey, Mayuko, Leighton, and Tatum Winn $100.00
Go Emi! You are an inspiration!
Richard and Matteo Chang $100.00
Paradise Le - Google Match $200.00
French Family (Scott, Kristen and Ethan French) $100.00
Zoey & Teigan $100.00
Paradise Le $200.00
Emmeline St. Vaughn $100.00
Sandy/Hajime/Kazuma Yokota Private
Always been ???? for you, Emi!
Richard, Met, & Logan $25.00
Winfield Han $100.00
Olga Nunez Hanpachern $1,000.00
Mark Kawayoshi Capital Match $205.00
Dustin Woo $100.00
Claudette Banares $100.00
Vivan Tran $200.00
Jupie, Grandma and Grandpa Chang, Abby and Anderson $550.00
Yeah! You’re at your goal now! We love you guys ??????
Miles + Nixon Private
Cant wait to join you and the fam!
Joanne Lee $100.00
Go TEAM EMI!!!
Gary Chang, Ping Liu, Austin Chang $100.00
Go team Emi! Love you guys
Wendy Cheng $300.00
Ted C. Private
Vaughn Ryan $20.00
Gary and Judy Private
Go Team Emi!
Anonymous $100.00
Go Team Emi, we're rooting for you!
Dionne Family Private
The Morris Family Private
jim renahan Private
Olga Hanpachern $500.00
Ann Kim $100.00
Rooting for all of you <3
Jun, Jung Hee Song $200.00
Derek, Val & Miles $100.00
Go Emi! Much love to all you guys. Derek & Val
Bonners $250.00
Go Team Emi!
Stacy Miller $100.00
Love you, Emi!!!
Ann To - Disney Match $121.00
Patrick Dodd $100.00
Mary Lee & Reid Williams Private
Jeff and Stacey Nishi $50.00
Go Team Emi! Sending hugs!!
Tracy Kim $200.00
Michael Aaronson Aaronson Private
Chris Liu $100.00
Tony & Lana $50.00
Emi ????
Pat Mak-Dibenga $50.00
Go Team EMI! Love and prayers to all of you!
Kayla $150.00
Go team Emi!
Brian Rizkallah $500.00
Love you Nan, everything you do is so inspiring!
Jeffrey Zhou $100.00
Go Emi!
Teresa, Law, and Kellen Liu $50.00
Go Emi! Keep pushing!
Victor and Andrea $200.00
Go Team Emi
Phil, Grace, Sterling & Spencer Private
Mark Kawayoshi $100.00
Go Team Emi! The Kawayoshi's will be there to cheer you on.
Joclyn Sanders $50.00
Erin Private
Anonymous $100.00
Remy Eclarinal $25.00
I’m rooting for Emi and the rest of the Song Family and hope her seizures get better or go away completely. Keep fighting li’l girl, we’re all behind you.
Liz & David Heindl $100.00
Go Team Emi!!! Sending all of our love & support. David & I will be at the team walk!
Melinda Private
Stephanie Lutjens Private
Sorry I will not be there. Go team Emi!!!
suzy reinke $25.00
Karen Grace $25.00
Darris Private
Judy Hui $100.00
Melissa Abernathy $50.00
Go Team Emi!
John Kim $250.00
Henry, Julie, Izzy, and Evie Hsiao $150.00
Go Emi!!!
Michelle & Tony $100.00
Go Team Emi!
Irene Lee $100.00
Bryan H. Atwood III $2,500.00
Tina Lu $200.00
David & Jina Choi $100.00
Good running into you randomly twice in one week. I saw your posts about Emi and can't imagine the hardship you guys are going through. We will keep you in our prayers.
Hilary $300.00
Eric Yang $100.00
Go Emi! Hooray for Team Emi!
Steve So / Betty Toy $100.00
Go Emi!!!
Audrey and Ian Kim $121.00
We love you Emi!!
Randi S Private
Wishing a brave little girl much love and happiness as she and her awesome parents make their way through life’s ups and downs. Miss you, Nannypoo!
VDR A&L $100.00
Song fam, we ?? & support you. Emi is a trooper & thanks for sharing with us the highs & lows. The park swing picture was priceless!! Glad you have such a loving community!
Courtney Kawata $50.00
Go Team Emi!!!
Michael Huang $100.00
Go team Emi!
Ohki Murai $200.00
Madison & Mason Nguyen $100.00
Sending tons of Love and Support to your beautiful family! ?? The Nguyen’s Michael, Ina, Madison, Mason
Jeff & Emily Reynolds $100.00
We love you guys! So proud of what you are doing.
Penny, Andy, Aiden and Ella. Coates $100.00
Go Team Emi! We love you guys!
Annie & Dustin Doi $200.00
Team Emi!! We love you guys ??
Jay Lee $300.00
Hi guys, thanks for sharing your family. Keep up the great work! Blessings.
Mac Suzuki $100.00
Samantha Porter $50.00
Jamie Epstein Private
Kristin Baker $25.00
Sending our best!
Sylvia Son $100.00
Go Emi!!
Sophie Lam $50.00
Go Emi!
Tu Huynh $100.00
anh vo Private
Anonymous $50.00
Stay strong guys.
Lucy Guill $50.00
MJ Kwon $50.00
Go EMI!!!!
Felice R. $50.00
Go Emi!! Wishing you the best and lots of love!! <3<3<3
Benson $25.00
Ryker McCormack $50.00
Not a CO worker but a different kind of CO. We love you Emi!
Martin Vasquez $100.00
Anthony Hsieh $100.00
Wishing you all the best Song Family!
Ed Festa $50.00
James Kim Kim $40.00
The Michels $50.00
Go Emi!
Haley Wang $100.00
Emi Rocks! Sending love and support from Taiwan. Hope we can be back soon to join the walk in the future. Haley, Pink, Nick
Yatos $100.00
Greg Ferris, Jon Angle, Luke, Zheng, Cynthia Banh $180.00
Lam Dinh $100.00
Paul and masaye irish $100.00
Taylor Robertson $50.00
Small and mighty!
Steph iso $25.00
Team Emi!! ????
Tomoko Mian & family $50.00
GO Team Emi!
Abby and Anderson $300.00
Go emi!!!
Go Team Emi!!! $25.00
Olivia, Dylan, Lor and Bobby $50.00
Walk on Team Emi!
Paige Lewis $50.00
Ash and John $121.00
We love you Emi!!
Austy G $121.00
Codi G $121.00
Kathleen Gallagher $200.00
Lucy, Lyla, and Kate $200.00
Go Team Emi, Go!
Daos Boonma $20.00
Wishing you all a great fundraiser! Love to the whole family!
Grandma Song $100.00
Grandma P $200.00
Nantalie Song $321.00
Carson Lu $10.00
Samantha Lu $10.00
Zoe-Genevieve Ma $10.00
Emilia Song $10.00
Luke Evans $10.00
Lyla Hanpachern $10.00
Mason Lee $15.00
Nixon Kim $15.00
Vivan Tran $10.00
Lucy Hanpachern $10.00
Miles Kim $10.00
Ethan Lee $15.00
Kathleen Gallagher $15.00
Mike Sullivan $15.00
Samantha Porter $15.00
Tina Lu $15.00
Erin Kadotani $15.00
young song $15.00
Paige Lewis $15.00
Timothy Lu $15.00
Irene Lee $15.00
Timaree Hayes $15.00
Jessica Barry $15.00
Tracy Kim $15.00
Eric Ma $15.00
Rinee-Marie Ma $15.00
Larry Lee $15.00
Nantalie Song $15.00
praneet siksamat $15.00
Jennifer Luna $15.00
Kate Hanpachern $15.00

A little pep talk and a team of supporters make for a strong finish 💪🏼 Last year she couldn’t walk *yet* but this year Emi sure took the lead and held her own. The daily pacing around the house is paying off 👟👟🤓 We’re so proud to be Team Emi!!! #TeamEmi #pepinherstep #downsyndrome #mosaicdownsyndrome #club21pasadena #togetherisbetter #infantilespasms #ketogenicdietforepilepsy

A little pep talk and a team of supporters make for a strong finish 💪🏼 Last year she couldn’t walk *yet* but this year Emi sure took the lead and held her own. The daily pacing around the house is paying off 👟👟🤓 We’re so proud to be Team Emi!!! #TeamEmi #pepinherstep #downsyndrome #mosaicdownsyndrome #club21pasadena #togetherisbetter #infantilespasms #ketogenicdietforepilepsy

Over the past 2.5 years since we learned about Emi having Down syndrome, one of the most important words we’ve embraced is “yet”. She’s not walking...yet. 
She’s not walking independently...yet. 
She’s not talking...yet. 
She’s not writing...yet. 
She’s not counting...yet. 
Our life with Emi is a practice of patience. Sometimes we are tested to the edge of what we think we can handle. We still have fears of what if she never does any of the above. But then she’ll show us, in her step-by-step way, that we should never give up, on her or ourselves, ever. 
3 days until the Club 21 walk!  Emi’s been doing laps in the house in preparation 👟 👟

#TeamEmi #downsyndrome #mosaicdownsyndrome #stepbystep #thepowerofyet

Over the past 2.5 years since we learned about Emi having Down syndrome, one of the most important words we’ve embraced is “yet”. She’s not walking...yet. She’s not walking independently...yet. She’s not talking...yet. She’s not writing...yet. She’s not counting...yet. Our life with Emi is a practice of patience. Sometimes we are tested to the edge of what we think we can handle. We still have fears of what if she never does any of the above. But then she’ll show us, in her step-by-step way, that we should never give up, on her or ourselves, ever. 3 days until the Club 21 walk! Emi’s been doing laps in the house in preparation 👟 👟 #TeamEmi #downsyndrome #mosaicdownsyndrome #stepbystep #thepowerofyet

2.4.16 - this was the day after we received Emi’s diagnosis of Mosaic Down syndrome. It was while we were  on a family vacay in Maui. She was a year old. The news shook us to the core, and I remember waking up that day hoping it was all a dream. We’ve never known anyone with Down syndrome, or anything about it. Googling brought on more anxiety and panic. Luckily our family took the news with such grace. While we were processing the shock, they held us up and kept the faith that everything would be ok. Not everyone is so lucky to have such support. Which is why organizations like Club 21 are so important. It’s like parenting, or losing a loved one — you don’t truly know what it’s like until you go through the experience yourself. Even with loving family and friends behind us, arriving at @clubtwentyone felt like coming home. Being among people with this commonality actually made things feel ok. Please help us support our community and in turn you will help carry another family, who just received their child’s diagnosis, over what may feel like a dark space. 
I wish the present me could’ve told the past me that everything would be perfectly fine. That Down syndrome isn’t scary. That Emi and all her pals who have this extra chromosome would bring a magnificent light into all the lives they touch. 
Just 2 more weeks until the Walk! Join us, donate, come meet some awesome new friends!! Thank you 🙏🏼 your support and awareness matter 💙💛 (btw, Oct is Down syndrome Awareness Month!) https://www.ds-stride.org/club21walkathon/profiles/team/TeamEmi

#TeamEmi #downsyndrome #mosaicdownsyndrome

2.4.16 - this was the day after we received Emi’s diagnosis of Mosaic Down syndrome. It was while we were on a family vacay in Maui. She was a year old. The news shook us to the core, and I remember waking up that day hoping it was all a dream. We’ve never known anyone with Down syndrome, or anything about it. Googling brought on more anxiety and panic. Luckily our family took the news with such grace. While we were processing the shock, they held us up and kept the faith that everything would be ok. Not everyone is so lucky to have such support. Which is why organizations like Club 21 are so important. It’s like parenting, or losing a loved one — you don’t truly know what it’s like until you go through the experience yourself. Even with loving family and friends behind us, arriving at @clubtwentyone felt like coming home. Being among people with this commonality actually made things feel ok. Please help us support our community and in turn you will help carry another family, who just received their child’s diagnosis, over what may feel like a dark space. I wish the present me could’ve told the past me that everything would be perfectly fine. That Down syndrome isn’t scary. That Emi and all her pals who have this extra chromosome would bring a magnificent light into all the lives they touch. Just 2 more weeks until the Walk! Join us, donate, come meet some awesome new friends!! Thank you 🙏🏼 your support and awareness matter 💙💛 (btw, Oct is Down syndrome Awareness Month!) https://www.ds-stride.org/club21walkathon/profiles/team/TeamEmi #TeamEmi #downsyndrome #mosaicdownsyndrome

3 weeks into the keto diet and here’s the daily menu that’s stuck:
Breakfast: 🥓 + 🍓 + olive oil
Snack: 🥜 (macadamia nuts)
Lunch: 🍗 + 🥦 + lotsa butter
Snack: 🥜 (macadamia nuts)
Dinner: 🐟 (salmon or tilapia) + 🥕 + lotsa butter 
With each meal there’s 🥛 (heavy cream) that we served whipped with some sugar-free jello. Yes, it’s as delicious as it sounds. It’s the grand finale of every meal. 
And of course she needs lots of 💧 💧- 43 oz to be exact, which has been an unachievable goal. At minimum she needs 35 oz and that her average, so phew. 
Every single food item and beverage has to be precisely measured on a food scale, down to the tenth of a gram. And now food is medicine so it must all be consumed. The time it takes to meal prep/serve/complete has increased considerably, but we’re getting into a routine. 
Seizures continue - no improvement yet to be seen except sometimes they don’t last as long - but we need to give it at least 3 months to determine whether it’s working. 
The bright side is this face. With being off meds completely, we’re seeing more of our true Emi. She’s smiling more, babbling more and generally seems more alert. That in itself feels like victory. 🙌🏼🤗 #ketogenicdietforepilepsy #infantilespasms #downsyndrome #TeamEmi #smilethatslays

3 weeks into the keto diet and here’s the daily menu that’s stuck: Breakfast: 🥓 + 🍓 + olive oil Snack: 🥜 (macadamia nuts) Lunch: 🍗 + 🥦 + lotsa butter Snack: 🥜 (macadamia nuts) Dinner: 🐟 (salmon or tilapia) + 🥕 + lotsa butter With each meal there’s 🥛 (heavy cream) that we served whipped with some sugar-free jello. Yes, it’s as delicious as it sounds. It’s the grand finale of every meal. And of course she needs lots of 💧 💧- 43 oz to be exact, which has been an unachievable goal. At minimum she needs 35 oz and that her average, so phew. Every single food item and beverage has to be precisely measured on a food scale, down to the tenth of a gram. And now food is medicine so it must all be consumed. The time it takes to meal prep/serve/complete has increased considerably, but we’re getting into a routine. Seizures continue - no improvement yet to be seen except sometimes they don’t last as long - but we need to give it at least 3 months to determine whether it’s working. The bright side is this face. With being off meds completely, we’re seeing more of our true Emi. She’s smiling more, babbling more and generally seems more alert. That in itself feels like victory. 🙌🏼🤗 #ketogenicdietforepilepsy #infantilespasms #downsyndrome #TeamEmi #smilethatslays

Each day got better. Visits from baby bro, wagon rides around (and around...and around...) the hospital floor, and playroom time gave Emi some reprieve from being couped up all day. This helped her meet fluid goals and finally we were free to go home! 
#TeamEmi #ketogenicdietforepilepsy #UCLA #LetsGetOuttaHere #Freedom

Each day got better. Visits from baby bro, wagon rides around (and around...and around...) the hospital floor, and playroom time gave Emi some reprieve from being couped up all day. This helped her meet fluid goals and finally we were free to go home! #TeamEmi #ketogenicdietforepilepsy #UCLA #LetsGetOuttaHere #Freedom

This is what her seizures look like. Head drops every couple seconds. She looks down and right, her palms and feet get clammy. She snaps out of it on her own. 
And this is also the stream of consciousness of a parent, 5 days into a hospital stay. Struggle. Is. Real. 
How we got thru it?  Day by day. Routine by routine. And with lots of support, whether by text or phone or Postmates, or visits. Thank you to our friends and family who kept us going. 💪🏼 #TeamEmi #infantilespasms #PrettyinPink #downsyndrome #MomKeepItTogether #ketogenicdietforepilepsy

This is what her seizures look like. Head drops every couple seconds. She looks down and right, her palms and feet get clammy. She snaps out of it on her own. And this is also the stream of consciousness of a parent, 5 days into a hospital stay. Struggle. Is. Real. How we got thru it? Day by day. Routine by routine. And with lots of support, whether by text or phone or Postmates, or visits. Thank you to our friends and family who kept us going. 💪🏼 #TeamEmi #infantilespasms #PrettyinPink #downsyndrome #MomKeepItTogether #ketogenicdietforepilepsy

Last week was hard. Emi spent 7 nights at UCLA getting initiated into a medical ketogenic diet as a treatment for her infantile spasms. Here’s a look into the first few days. It starts with an EEG - electrodes places on her head (they don’t hurt her expect for some hair tugging when it’s being glued on... but boy does she hate when her hair is tugged, even slightly). She wore this overnight so we could get a baseline read of her seizure activity. She gets seizures when she wakes up from sleep and it usually lasts 5-10 min. 
Dad shared his feelings too, and the words were so perfect I just copied them here. 
#EmiStrong #TeamEmi #UCLA #ketogenicdietforepilepsy #infantilespasms #downsyndrome

Last week was hard. Emi spent 7 nights at UCLA getting initiated into a medical ketogenic diet as a treatment for her infantile spasms. Here’s a look into the first few days. It starts with an EEG - electrodes places on her head (they don’t hurt her expect for some hair tugging when it’s being glued on... but boy does she hate when her hair is tugged, even slightly). She wore this overnight so we could get a baseline read of her seizure activity. She gets seizures when she wakes up from sleep and it usually lasts 5-10 min. Dad shared his feelings too, and the words were so perfect I just copied them here. #EmiStrong #TeamEmi #UCLA #ketogenicdietforepilepsy #infantilespasms #downsyndrome

She rocks...and she WALKS!! Emi has made great strides (no pun intended) in the last 6 months when it comes to mobility. She’s been doing physical therapy (cool kids call it “PT”) since she was 9 months old, so basically since then she’s worked out way harder than mom. 
We celebrate every step she takes because we know how much goes into each little movement. She doesn’t even know how proud of herself she should be...come join us on 10/20 and give her a high-five 👋 yourself! 
#club21walk #togetherisbetter #PTqueen #TeamEmi

She rocks...and she WALKS!! Emi has made great strides (no pun intended) in the last 6 months when it comes to mobility. She’s been doing physical therapy (cool kids call it “PT”) since she was 9 months old, so basically since then she’s worked out way harder than mom. We celebrate every step she takes because we know how much goes into each little movement. She doesn’t even know how proud of herself she should be...come join us on 10/20 and give her a high-five 👋 yourself! #club21walk #togetherisbetter #PTqueen #TeamEmi

Team Emi, reporting for duty! Our biggest event of the year is upon us on 10/20:  the Club 21 Together is Better Walk. 
This photo was taken on Emi’s first day of preschool. For a student with special needs, there are many options: type of class (e.g. special day class, general ed, a mix), services offered by the school district (e.g. physical therapy, speech, occupational therapy), types of assistance (e.g. a one-on-one aide, communication devices). IT’S A LOT TO COMPREHEND 🤯, but Club 21 has been our ultimate resource. We’ve taken classes and met so many wonderful super-families that have taught and guided us through Emi’s transition to preschool. 
Help us support other families by joining us and donating to a well-deserving cause!  #togetherisbetter #TeamEmi @clubtwentyone

Team Emi, reporting for duty! Our biggest event of the year is upon us on 10/20: the Club 21 Together is Better Walk. This photo was taken on Emi’s first day of preschool. For a student with special needs, there are many options: type of class (e.g. special day class, general ed, a mix), services offered by the school district (e.g. physical therapy, speech, occupational therapy), types of assistance (e.g. a one-on-one aide, communication devices). IT’S A LOT TO COMPREHEND 🤯, but Club 21 has been our ultimate resource. We’ve taken classes and met so many wonderful super-families that have taught and guided us through Emi’s transition to preschool. Help us support other families by joining us and donating to a well-deserving cause! #togetherisbetter #TeamEmi @clubtwentyone